Page 65 - Mann Ki Baat - November2022
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works wonders for the muscles.
It not only relaxes the muscles
but also strengthens them.
Hydrotherapy also has to be
guided as it requires constant
supervision. Other than
exercises, a powered wheelchair
can also make the life of a
Muscular Dystrophy-affected
individual partially independent.
Above all, a Muscular Dystrophy
patient and his/her family need
to come to terms with this
disease and also need to learn
how to manage and live with it
with a positive attitude.
In Solan, a district of
Himachal Pradesh, there
is an Integrated Muscular
Dystrophy Rehabilitation Centre
(IMDRC), being run by the IAMD,
established in 1992. A 50-bed
facility welcomes patients
and their families from all over
India — for specialized guided for these Muscular Dystrophy
physiotherapy, hydrotherapy, patients will come from the
and genetic and psychological research which will bring forward
counseling. It is also creating the drugs for the cure. There
a support group of afflicted is a need to have a mission-
patients and their families for mode type research program
retreats, bonding, and sharing. for successfully tackling this
This ecosystem of self-support complex unmet need. The results
in a beautiful living environment will take time but a beginning
has grown to include over has to be made. We can be the
2,000 patients over the years. leaders in bringing affordable
Recreational activities involving medicines and therapies to
volunteers from different the Neuromuscular Genetic
educational institutions nearby, population not only in our country
picnics, and counseling– but across the globe. This will be
particularly for family members– the most remarkable initiative
help ease the lives of those of the millennium to make India
affected and afflicted. ‘Atmanirbhar’ in drugs for the
Management of the disease treatment of Neuromuscular
is important, but the boon Genetic disorders.
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